This document presents the research conducted with children and adolescents with Complex Health Conditions that need specialized pediatric attention and spend periods of hospitalization in specialized centers of high technical complexity.
Aim: To identify factors of well-being during hospitalization and home convalescence in children and adolescents with Complex Health Conditions. Method: The following qualitative study was design with an exploratory and multi-method approach. The sample included children and adolescents with Complex Health Conditions, their families, and professionals participating in their care. The sample included participants from multiple rural and urban provinces of Catalonia, hospitalized or receiving convalescence care. The data was collected through the organization of co-creation spaces with pedagogical materials designed for each group on an ad hoc basis. Participants also completed standardized tests adapted to their age on “Resilience”, “Psychological Well-being”, and “Positive Mental Health” previous to each co-creation space. Analysis: Qualitative data was analyzed using the Diamond Technique and MAXQDA program and quantitative data was analyzed using the non-parametric Mann Whitney U test, establishing a type I error of 0.05 and the R Statistical Program. Conclusion: The experience of hospitalization and home convalescence is decisive in the adequate evolution of patients and their family environment, and in the appearance of sequelae. Hence, it is necessary to explore the perspective of these patients and their families to identify indicators of well-being that can be utilized as reference to optimize the process of hospitalization and home convalescence. This project presents the opportunity to achieve bolder empowerment of health, growth, and development.
PhD in Health Research from International University of Catalonia. Lecturer at University Pompeu Fabra, Spain. Researcher of the acknowledged research group Hospital Pedagogy in Neonatology and Pediatrics (SGR, 1314) Social and Cultural Anthropology Degree, UNED, Spain. Nursing Degree, University of Barcelona, Spain.
Psychology undergraduate student at University of British Columbia (UBC). Research assistant at the Hospital Pedagogy in Neonatology and Pediatrics Lab at the University of Barcelona and at the Centre for Health and Coping Studies (UBC). Received the Outstanding Student Award (2017) and the Katherine Brearley Arts Scholarship (2019).
Bachelor in Psychology from Los Andes University from Colombia. Master in Clinical Psychology at Pontificia Universidad Javeriana. Postgraduate in Hospital Pedagogy at the University of Barcelona. Integrating education, clinical psychology, psicosocial, playful and pedagogical interventions with the vulnerable population well as executive coach.
PhD in Psychology and Professor at the University of Barcelona, Spain. Principal Investigator of the Subjective Perception Infancy in Situation of Illness Project. Barça Foundation. Director of the International Observatory of Hospital Pedagogy and Scientific Advisors of the Foundation for Global Community Health (GCH).