This document presents the research conducted with children and adolescents with Complex Health Conditions that need specialized pediatric attention and spend periods of hospitalization in specialized centers of high technical complexity. Aim: To identify factors of well-being during hospitalization and home convalescence in children and adolescents with Complex Health Conditions. Method: The following qualitative study was design with an exploratory and multi-method approach. The sample included children and adolescents with Complex Health Conditions, their families, and professionals participating in their care. The sample included participants from multiple rural and urban provinces of Catalonia, hospitalized or receiving convalescence care. The data was collected through the organization of co-creation spaces with pedagogical materials designed for each group on an ad hoc basis. Participants also completed standardized tests adapted to their age on “Resilience”, “Psychological Well-being”, and “Positive Mental Health” previous to each co-creation space. Analysis: Qualitative data was analyzed using the Diamond Technique and MAXQDA program and quantitative data was analyzed using the non-parametric Mann Whitney U test, establishing a type I error of 0.05 and the R Statistical Program. Conclusion: The experience of hospitalization and home convalescence is decisive in the adequate evolution of patients and their family environment, and in the appearance of sequelae. Hence, it is necessary to explore the perspective of these patients and their families to identify indicators of well-being that can be utilized as reference to optimize the process of hospitalization and home convalescence. This project presents the opportunity to achieve bolder empowerment of health, growth, and development.
Undergraduate Student in Psychology
Department of Psychology
University of British Columbia, Canada
Sarah Muñoz-Violant is pursuing a bachelor’s degree in Psychology and a minor degree in Special Education at the University of British Columbia (UBC), Canada. She holds a Research Assistantship at the Centre for Coping Studies at UBC since 2018 under the supervision of Dr. Anita DeLongis and at the Hospital Pedagogy in Neonatology and Pediatrics Lab at the University of Barcelona since 2017 under the supervision of Dr. Violant-Holz. She is currently a member of the Barça Foundation Project: Subjective Perception Infancy in Situation of Illness which aims to identify factors of well-being during hospitalization and home convalescence in children and adolescents with Complex Health Conditions. She is a Peer Support Volunteer for UBC students and staff with the Speakeasy Alma Matter Society and a member of the External Educational Workshop Outreach Group responsible for the creation and implementation of free Mental Health Self-Care workshops. Moreover, she held a reviewer role at the Undergraduate Psychology Journal and worked towards the publication of Volume 5 in August 2019. She is working as a member of the “Future Leader Program” in ICPESS 2021 – Jakarta, BRICSCESS 2021 – Shanghai, ICPESS 2022 – Barcelona. Received the Outstanding International Student Award (2017), the Faculty of Arts International Student Scholarship (2019), the Katherine Brearley Arts Scholarship (2019), and the International Community Achievement Award (2019).